Caring for Codeigh Mae is a fundraising campaign for our daughter who has been diagnosed with Congenital Nephrotic Syndrome, a rare kidney condition.
See Our GoFundMe Story
Who is Codeigh Mae?
Codeigh Mae is our 5-year-old daughter who was born prematurely in April 2018. She is the youngest of six kids and was diagnosed with Congenital Nephrotic Syndrome, a rare genetic kidney condition when she was 2-weeks-old. Learn even more about Codeigh Mae.
What is Congenital Nephrotic Syndrome?
Congenital Nephrotic Syndrome is a rare kidney condition that causes important proteins to leak into the urine. It is a genetic condition that causes substantial amounts of protein and fats to be excreted in the urine, resulting in swelling of the body and other kidney-related complications, including end-stage renal failure. Learn more about Congenital Nephrotic Syndrome.
How can I help?
Originally created as a GoFundMe campaign, Caring for Codeigh Mae now offers a variety of ways that you can donate. We’ve listed all the ways that you can donate here.
Even if you can’t donate, if you could share our GoFundMe link with your friends, it would be a great help!
https://www.gofundme.com/f/caring4codeigh-mae
Recent Posts
Port Removal, Catheter Puncture & Dangerously Low Blood Pressure - Codeigh Mae has been diagnosed with Congenital Nephrotic Syndrome, a rare kidney condition. This is an update on her 10th surgery and other complications we're dealing with.
Surgery #9 – Radical Bilateral Nephrectomy - Codeigh Mae has been diagnosed with Congenital Nephrotic Syndrome, a rare kidney condition. This is an update on her 9th surgery - a double nephrectomy.
Tune Ups and Preparing for Surgery #9 - Codeigh Mae has been diagnosed with Congenital Nephrotic Syndrome, a rare kidney condition. This is her Mom's journal as we prepare for surgery #9.
Bouncing Off the Walls - Codeigh Mae has been diagnosed with Congenital Nephrotic Syndrome, a rare kidney condition. This is her Mom's journal about a common interaction with doctors.
Caring for Codeigh Mae 